Author(s): Erin Feasey
Hi my name is Erin Feasey.
Our beautiful son has Duchenne Muscular Dystrophy which is a progressive muscle wasting condition with a limited life span. He is a cheeky wee intelligent soul who loves life AND BOOKS!
As parents we were struck with the OMG how will we ever tell him or begin to talk about some of this stuff?
I have written my own picture book DINOSAUR MAC'S DISCOVERY and follows a boy through the beginning stages of this condition.
He wears a dinosaur tail everywhere and follows him on some of his "adventures" like physio, Echocardiograms and so on. It is meant to be heartwarming (dino tail), funny (dino tail) while being real (people) and accurate (words like Physio and paediatrician).